Patient-family views on pediatric MS research needs, outcomes, and

Sponsor: Massachusetts General Hospital

Location(s): United States


The goal of our planned study is to understand patient and family perspectives on research priorities, study design, and identify potential barriers to research related to pediatric MS, including therapeutic clinical trials, observational studies, and health policy studies. This work can help identify new studies of interest, more successfully engage patient and family participation in research studies, and potentially optimize clinical trial design for new therapeutic agents. Background: Patient and family interest in MS research is a poorly understood area, yet critical for successfully understanding and treating those in the pediatric age group who are affected by the disease.