The International Sjögren's Syndrome Registry is funded by the National Institute of Dental and Craniofacial Research (NIDCR), the National Eye Institute (NEI), and the National Institutes of Health Office for Research on Women's Health, Bethesda, MD, USA.

A collaborative group of clinical and laboratory investigators from across the world work together to study individuals with Sjögren's syndrome and those who may have Sjögren's syndrome. This collaborative group of scientists is known as the Sjögren's International Collaborative Clinical Alliance (SICCA).