Returning Genetic Results in Biobanks: Opening an International Dialogue
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Sponsor: Brocher Foundation
Location(s): United States
Description
Brocher Workshop on ”Returning Genetic Results in Biobanks: Opening an International Dialogue”
Tuesday, November 19, 2013 to Thursday, November 21, 2013
This invitational workshop will bring together 31 leading researchers and scholars from around the world, all experts in the ELSI of genetic technologies, feedback of results, and biobanking to explore the issue of feedback of incidental findings and results to research participants. It will also enable international and comparative dialogue on the cutting-edge issue of feedback of findings to a participant’s family and genetic kin, including after the participant’s death. The workshop will enhance the work of ELSI 2.0 for Genomics and Society, the U.S.-based Return of Results Consortium/CSER ELSI Working Group, and H3Africa. In addition, it will result in a set of papers comparing international approaches to return of results and incidental findings and will create rich online international resources to support development of sound policy and practices in the global genomics community.
This invitational workshop will bring together 31 leading researchers and scholars from around the world, all experts in the ELSI of genetic technologies, feedback of results, and biobanking to explore the issue of feedback of incidental findings and results to research participants. It will also enable international and comparative dialogue on the cutting-edge issue of feedback of findings to a participant’s family and genetic kin, including after the participant’s death. The workshop will enhance the work of ELSI 2.0 for Genomics and Society, the U.S.-based Return of Results Consortium/CSER ELSI Working Group, and H3Africa. In addition, it will result in a set of papers comparing international approaches to return of results and incidental findings and will create rich online international resources to support development of sound policy and practices in the global genomics community.