Parental Education and Choice Regarding the Retention and Research Use of Residual Newborn Screening Samples

Investigator: Miriam Kuppermann, PhD, MPH
Sponsor: University of Utah

Location(s): United States


This study addresses the content, timing, efficacy, and impact of prenatal education about Newborn Screening Samples and bloodspot sample retention.  To determine what pregnant women, young mothers, and their partners want to know regarding the retention and use of residual bloodspot samples. To create multimedia educational tools to be used in the prenatal care environment that will provide basic information about residual sample retention and use. To determine the impact of the prenatal education intervention on parental knowledge, attitudes, and decisions regarding NBS services and the retention and use of residual samples in diverse populations of English and Spanish speaking pregnant women.