CARRA Registry

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Investigator: Emily Von Scheven, MD
Sponsor: Duke University

Location(s): United States

Description

The CARRA Registry is a network of CARRA pediatric rheumatology research centers across North America dedicated to catapulting the field of pediatric rheumatology research to the level of performance necessary to realize dramatic improvements in the outcomes and quality of life for all children with rheumatic disease.

Through the creation of a unifying, scalable informatics infrastructure and the engagement of families, patients, and communities, The CARRA Registry will provide the opportunity for affected children at every CARRA clinical research site to participate in high-quality clinical and translational research.